New Comprehensive Toolkit Empowers Adults with Cerebral Palsy
For years, most cerebral palsy (CP) resources have centered on children. Now, a groundbreaking 172-page “Adult CP Toolkit” is shifting that focus to the growing population of adults with cerebral palsy.
Developed over three years by the Cerebral Palsy Research Network, this first-of-its-kind guide offers practical strategies and expert advice on every stage of adult life — from finding housing and caregivers to navigating self-advocacy, mental health, intimacy, nutrition, sleep, and managing age-related changes.
With more than 800,000 adults living with cerebral palsy in the United States, the toolkit provides valuable guidance for individuals, their families, and health care providers.
“As the parent of a young adult with CP, I have spent years searching for the best care and support for my daughter,” said Michele Shusterman, cofounder of the Cerebral Palsy Research Network and project manager for the toolkit. “Now, as my daughter begins adulthood, I am grateful for the wisdom and practical insight this resource provides to empower her generation and those who follow.”
This new resource marks a major step forward in addressing the lifelong needs of people with cerebral palsy — helping adults with CP live more independently, advocate for their rights, and access the support they deserve.
You can download PDF version of The Adult Cerebral Palsy Toolkit below, as well as their other four comprehensive toolkits to support individuals and families affected by cerebral palsy. Other languages, including Spanish, and Portuguese, and printed versions can also be purchased through the CPRN website.
The Adult Cerebral Palsy Toolkit is a groundbreaking 172-page guide created specifically for adults living with CP. Developed through a collaborative effort of over 50 community members, clinicians, and researchers, this toolkit addresses common concerns of adults with CP. It provides expert medical insights, peer perspectives, and practical guidance on topics such as self-advocacy, independent living, and navigating healthcare systems.
The Cerebral Palsy Toolkit is a foundational resource for parents and caregivers who have recently received a CP diagnosis. It offers essential information to help navigate the initial stages of understanding and managing CP.
The Dystonia in Cerebral Palsy Toolkit is a specialized resource that provides information about dystonia in the context of CP. It includes insights into the condition’s experience, diagnosis, treatment options, and current research, offering a comprehensive understanding for affected individuals and healthcare providers.
The Wellbeing Guide for Parents and Caregivers is tailored for those raising a child, adolescent, or young adult with CP or another disability. It focuses on the emotional and practical aspects of caregiving, aiming to support the wellbeing of caregivers.
